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Orphan Drugs - Dataset 2 - YouTube rare disease issue-network
This dataset forms part of the work undertaken for the Wellcome Trust funded project ‘Orphan drugs: High prices, access to medicines and the transformation of biopharmaceutical innovation’ [219875/Z/19/Z]. It comprises of two .csv format files. The data were gathered using the University of Amsterdam Digital Methods Initiative’s ‘Data Tools for YouTube’ tool (DTFY) before being processed and extracted from Gephi (0.9.2) in line with approval form the University of Sheffield School of Sociological Studies Research Ethics Committee (ref: 040659) granted on 14-Jun-2021. The data include a list of 7,469 nodes and 72,9327 edges used within social network analyses of YouTube data around the term 'rare disease'.
Funding
Wellcome Trust 219875/Z/19/Z
History
Ethics
- The project has ethical approval and the number is included in the description field
Policy
- The data complies with the institution and funders' policies on access and sharing
Sharing and access restrictions
- The data can be shared openly
Data description
- The file formats are open or commonly used
Methodology, headings and units
- There is a file including methodology, headings and units, such as a readme.txt
