Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'
datasetposted on 15.09.2020 by Philip Powell, Jill Carlton, Donna Rowen, John Brazier
Datasets usually provide raw data for analysis. This raw data often comes in spreadsheet form, but can be any collection of data, on which analysis can be performed.
Supplementary files to support a manuscript on the development of a new quality of life questionnaire in DMD: the DMD-QoL.
The research is part of the Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy project and is funded as part of project HERCULES led by Duchenne UK.
This data supports a manuscript in submission. A protocol for the work is available online: Powell et al. (2019), http://dx.doi.org/10.1136/bmjopen-2018-023685
The research received ethical approval from the UK National Health Service (NHS REC reference: 18/SW/0055).
project HERCULES (Duchenne UK)
EthicsThe project has ethical approval and have included the number in the description field
PolicyThe data complies with the institution and funders' policies on access and sharing
Sharing and access restrictionsThe data can be shared openly
- The file formats are open or commonly used
Methodology, headings and units
- Headings and units are explained in the files