Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'
dataset
posted on 2021-01-13, 17:15 authored by Philip PowellPhilip Powell, Jill CarltonJill Carlton, Donna RowenDonna Rowen, John BrazierSupplementary files to support a manuscript on the development of a new quality of life questionnaire in DMD: the DMD-QoL.
The research is part of the Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy project and is funded as part of project HERCULES led by Duchenne UK.
A protocol for the work is available online: Powell et al. (2019), http://dx.doi.org/10.1136/bmjopen-2018-023685
The research received ethical approval from the UK National Health Service (NHS REC reference: 18/SW/0055).
Funding
project HERCULES (Duchenne UK)
History
References
Ethics
The project has ethical approval and have included the number in the description fieldPolicy
The data complies with the institution and funders' policies on access and sharingSharing and access restrictions
The data can be shared openlyData description
- The file formats are open or commonly used
Methodology, headings and units
- Headings and units are explained in the files