9 files

Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'

posted on 13.01.2021, 17:15 by Philip PowellPhilip Powell, Jill CarltonJill Carlton, Donna RowenDonna Rowen, John BrazierJohn Brazier
Supplementary files to support a manuscript on the development of a new quality of life questionnaire in DMD: the DMD-QoL.

The research is part of the Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy project and is funded as part of project HERCULES led by Duchenne UK.

A protocol for the work is available online: Powell et al. (2019), http://dx.doi.org/10.1136/bmjopen-2018-023685

The research received ethical approval from the UK National Health Service (NHS REC reference: 18/SW/0055).


project HERCULES (Duchenne UK)



The project has ethical approval and have included the number in the description field


The data complies with the institution and funders' policies on access and sharing

Sharing and access restrictions

The data can be shared openly

Data description

  • The file formats are open or commonly used

Methodology, headings and units

  • Headings and units are explained in the files